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You are here: Home / Archives for Inspirational

“My Gutsy Story” Doreen Cox

October 22, 2012 by Sonia Marsh 33 Comments

Full Circle: ‘Mommy’ to My Mom

Being called ‘mommy’ at age 61 would not have been such a big deal if that was a joke or my mid-life crisis had included the adoption of children. When my own mother first called me ‘mommy,’ the shock hit me hard, cycling me through turbulent waves of emotion before dumping me into despair. I wanted OUT of this Care Bear experience! One minute Mother was standing beside the bed, chattering away in her dementia-addled language; in the next she collapsed, hitting her head on the bedside table. Blood streamed down her face as she looked at me and cried, ‘Mommy, Mommy, Mommy!’ The Care Bear part of me kicked into gear and got her safe. A new part of me emerged that cuddled her and made soothing remarks to my mother, now my child. I fell apart only after my neighbor showed up to help.
We had come full circle, Mother and I. For the first years of my life, she had fed, bathed and diapered me; cleaned all of my body parts that spewed out a ton of smelly fluids. Mother had comforted, sang to, cuddled, kissed and tickled me. Just as she was there for me at my beginning, so was I there for Mother at her end. I fed, bathed, briefed and cleaned up a ton of smelly fluids.

I sang to, cuddled, kissed and tickled her, making crazy faces in order to elicit a giggle. Never having had children, I finally got an up close and personal experience of what it is like to be a mommy; well, sort of. My child-mother was not learning as young children do; she was in a state of unlearning. A child had taken up residence in the brain of Mother’s aging body.
There were moments when I could hardly stand to be around her, this person who was not like my mother anymore. Mother’s brain could not even tell me if she did or did not need to use the toilet. The guessing game intensified yet, the ‘guess-er’ in me had worn out. At night, trying to discern calls for help from Mother’s sighs and mumbles coming through the baby monitor had worn down my last nerve. At least, each episode felt like a last nerve.
The brain in caregivers cannot help but be covered in a big blanket of guilt. Every time I talked to Mother in a grumpy, irritated tone, her eyes clouded in confusion; lips quivered as her brain scrambled even more, trying to grasp a next word to say. My guilt intensified and I often sank into despair. I had some intense emotional meltdowns during the transition of my role from Care Bear to Mommy. After breathing through one intense toilet-related meltdown, I looked in the mirror and thought, “Who are you? I can’t stand you! I do not even know you!” The thought that I had most about Mother was, “I can’t stand it; how she acts!” I could not stand her behaviors. About myself, though, I cannot recall ever thinking, “I cannot stand how you are!” The emotional pressure was relieved when I recognized how unkind I was being towards myself.
It became easier then to breathe through my tiredness and frustration; to add a more cheerful lilt to my voice each morning and each night when I did a tucking-in ritual. During the night when those bad people showed up, I found it easier to sit and cuddle Mother; to stroke her hair. It was even easier to play the strict parental kinds of roles. I had to get Mother to swallow those pills; use the walker; wear the CPAP mask; join me in the shower and brush the few teeth left in her mouth.

Dody and her mom

My heart opened when I became kinder towards myself and I began to take notice of Mother’s still-loving gestures. “She is still here!” I marveled out loud one day. I began to see the signs of simple love in Mother’s touch on my arm, her bright-eyed sparkling glances at me and her smiles that lit up my heart. One of my favorite memories occurred in the wee hours of a morning several months before she died. The bed rails were rattling. As I stumbled down the hall, tired and annoyed at dealing with night-time delusional events, I paused at her doorway and peeked into the room. She did not need me at all. Mother was having a pretend conversation with the 3 stuffed animals that shared her bed. She had gotten the larger tiger and otter situated on the rail. The little bunny-eared duck would not stay. Mother was animatedly talking to her animal friends. Though her words were garbled, the joy in her voice and on her face filled my own heart to near bursting.

Dody’s Mom

It often seems to me now that the 3 year period as her Care Bear was a final gift offered to me from Mother. I am more aware of commonalities versus differences between me and my fellow humans. Coping with my reactions towards the downward spiral of Mother’s dementia has been the catalyst for me to become a more honest, forthright human being, especially towards myself. I no longer despise the ugly yet human emotions that surfaced during these years; I’ve learned to give them a nod while breathing through their force. When walking in a store or driving in traffic, I feel more humble and connected to those persons whom I pass or accidentally bump up against. I see people who are angry, fearful, impatient or sad. In any given moment, I, too, am feeling any of those same emotions, coping as best I can. I am human after all. I was a helper person to my mother yet also, a person who was emotionally ready to receive help on an emotional, spiritual level.

You can connect with Doreen Cox on Twitter @mothersitting, and on Facebook, and visit her blog.


Doreen’s book is on Amazon.

 Doreen Cox Bio:

Armed with a BS degree from a liberal arts college, a sense of wanderlust and a passion for experiential knowledge relating to people and their social environments, Doreen Cox began a career path that, to some, might appear haphazard. Her revolving door kind of career path includes: business firm project coordinator positions; hospital staff recruitment; substance abuse counselor; mental health screener; and emotionally disturbed children’s case manager. Such is the author’s career path. The common denominators for each career endeavor are the use of communication and liaison skills in settings that were dynamic to the author because of the diversity of people who she encountered.
The author was into her 8th year as a group counselor at an alternative school for at-risk students when her most challenging position presented itself. The author’s first book, Adventures in Mother-Sitting, is a memoir of her 3 years as a full-time caregiver. Because of the downward spiral of her mother’s mental, physical and developmental abilities due to dementia, the author’s well-honed communication and listening skills were put to their ultimate test. Her previous career adventures had indeed added more stores of knowledge, fostered the growth of self-confidence and provided assuagement of that restless spirit. The experience as her mother’s caregiver, however, offered the ultimate spiritual adventure, bringing to the author bittersweet lessons related to trust, faith, unconditional love and compassion. The author, wanderlust currently at rest, resides in Florida.

Sonia Marsh Says: You told your story with such honesty and it made me realize how sad it is when we love someone and they grow old and can no longer take care of themselves. It’s tough not to get angry and frustrated at times. The sad part is there’s nothing we,or our loved one can change, yet we so desperately want them back to how they used to be. Thanks for sharing your story and opening our eyes.

Please leave comments and questions for Doreen Cox below. She will be over to respond.

***

Do you have a “My Gutsy Story” you’d like to share?

To submit your own, “My Gutsy Story” you can find all the information, and our sponsors on the “My Gutsy Story” contest page. (VIDEO) Submission guidelines here.

Three other October stories are up. So far we have Duke Marsh “My Gutsy Story” and Don Darkes “My Gutsy Story,” and Kim Brower’s “My Gutsy Story.”

I hope you enjoy the “My Gutsy Story” series and share with others through the links below. Perhaps you’d like to submit your own. Thanks.


Tired of Negative Media? TED-x Will Inspire You

October 18, 2012 by Sonia Marsh 7 Comments

TED-x Orange Coast

Does negative news affect your mood?

Do you long to hear uplifting news about the world we live in?

If so, I know one place that will transform “doom and gloom” into “how lucky we are to have such amazing people transforming the world we live in.”

Where?

The TEDx Talks around the world.

On October 10th, I attended TEDx Orange Coast at the Segerstrom Center for the Arts in Costa Mesa.

I purchased my ticket a few days before the event, and had no idea what to expect.

The program started at 8:30 am, and continued all day until 5pm with a few coffee breaks and lunch.

An impressive line-up of thirty speakers of all ages and backgrounds discussed the theme “Redefining Relevance.”

Out of thirty or so brilliant speakers, I selected five who truly inspired me to believe in the good in our world.

Jack Andraka

1). Jack Andraka Video (High School Innovator) Watch video.

Jack is only 15, and he invented a paper strip, just like the ones diabetics use to test their blood sugar levels, that detects early stages of pancreatic, ovarian and lung cancers. This paper strip costs 3 cents and takes only 5 minutes to work. Jack said that over 85% of pancreatic cancer is detected too late. His enthusiasm and passion is contagious. Watch the video and you will be uplifted by this young man.

Ray Goren

2). Ray Goren Video (Musician) Watch him play. Amazing blues.

How can a twelve-year-old boy play the blues with such talent? Watch his facial expressions and you cannot help but feel the music is coming from every cell within his body. His electric guitar seems to be an extension of his inner core, not an external instrument.

Watching him on stage at the Segestrom Hall, was one of the highlights of the day.

Mike Kenyon

3). Mike Kenyon (Development Leader)

Mike travels around the world and gives mobility back to those who are physically handicapped. He started, “Free Wheelchair Mission” a nonprofit in Irvine, that provides wheelchairs for the disabled poor in the developing world. (Take a look at their website.)

Mike showed photos of disabled kids and adults who are forced to crawl on the ground as there are no wheelchairs for them. With a plastic chair, and a couple of bike tires, Mike was able to create functional wheelchairs for disabled people at very little cost. He showed photos of one mother who carried her teenage son on her back since he was born, and the amazing gratitude they expressed when Mike gave her son a wheelchair.

Reggie Littlejohn

4).Reggie Littlejohn (President of Women’s Rights Without Frontiers)

Through a near death experience of her own, and a miscarriage, Reggie discovered that the most painful moment in her life, held the key to her life purpose.

Reggie decided to combat forced abortion, gendercide and sex trafficking in China. She shared stories of young Chinese pregnant women being forced to undergo  abortions without anesthesia.

Nigel Nisbet

5). Nigel Nisbet (Director of Content Creation for the MIND Research Institute)

Nigel was a former teacher at an all-girls English school in rural England. After moving to the U.S., he decided to became a Mathemathics, Physics and Computer Science teacher at Van Nuys Senior High.

Nigel noticed that kids were not able to grasp the concepts of algebra and geometry from text books, so one day, at the grocery store, he decided to buy chocolate bars in different shapes and use chocolate to challenge the kids to think. He discovered that this worked and that math is so much more than just numbers.

Nigel is a passionate believer in finding ways to build engaging, interactive visual games that teach all students how math really works.

So by the end of the day, my mood had transformed to all the good that is happening in our world.

If only we could always focus on those positive aspects of life, imagine what creative energy and passion we could project to the rest of humanity.

If you need some inspiration, check out the most popular TED Talks here.

***

Do you have a “My Gutsy Story” you’d like to share?

To submit your own, “My Gutsy Story” you can find all the information, and our sponsors on the “My Gutsy Story” contest page. (VIDEO) Submission guidelines here.

Three October stories are up. So far we have Duke Marsh “My Gutsy Story” and Don Darkes “My Gutsy Story,” and Kim Brower’s “My Gutsy Story.”

I hope you enjoy the “My Gutsy Story” series and share with others through the links below. Perhaps you’d like to submit your own. Thanks.

The Winner of the September “My Gutsy Story”

October 11, 2012 by Sonia Marsh 4 Comments

Congratulations to Paige Strickland who won the September 2012, “My Gutsy Story” contest with 56% of the votes. I also want to congratulate Jonna Ivin, Tom Cirignano and Tracy Leigh Ball. You are all winners and thank you for sharing your “My Gutsy Story.”

Paige Strickland 1st Place

 

Paige Strickland Congratulations for all your hard work.


Sonia Marsh Says: A very encouraging and positive ending to your hard work and determination to find your birth roots.

 

Jonna Ivin 2nd Place

 

Jonna Ivin takes 2nd place.

Jonna Ivin

Sonia Marsh Says: Jonna, you have a skill at injecting humor into a dramatic situation.

 

Tom Cirignano 3rd Place

Tom Cirignano, came in 3rd place.

 

Tom Cirignano

Sonia Marsh Says: Tom shows the “Gutsy” side of a young man who just goes for it.

 

Tracy Leigh Ball

 Tracy Leigh Ball takes 4th place.

Sonia Marsh says: I found your story incredible and a warning to others. As you say, “I am sharing my story today so that I can help prevent others from doing the same thing my parents did.”

***

Do you have a “My Gutsy Story” you’d like to share?

To submit your own, “My Gutsy Story” you can find all the information, and our sponsors on the “My Gutsy Story” contest page. (VIDEO) Submission guidelines here.

Two October stories are up, both men for a change. So far we have Duke Marsh “My Gutsy Story” and Don Darkes “My Gutsy Story.”

I hope you enjoy the “My Gutsy Story” series and share with others through the links below. Perhaps you’d like to submit your own. Thanks.

***

I am doing at book signing this evening, October 11th, at Pages Indie Book Store in Manhattan Beach, from 7-8:30 pm. Please come join me.

 

 

“My Gutsy Story” by Jonna Ivin

September 17, 2012 by Sonia Marsh

 Role Reversal

“What’s wrong?” I asked rushing into my mother’s room.

She placed a finger over the tracheotomy tube that had been inserted into her neck a few months before and struggled to form words, “It’s…” She began to fiddle with the trach tube moving it around.

I tried to move her hand away to get a better look. “Don’t touch it. Let me see.”

Mom didn’t listen. She kept her finger where it was, forcing her breath to make the words. “Feels crooked.”

“Your trach is crooked?” I asked.

She rested her head back on the pillow and nodded having used up what little energy she had.

I took a closer look. “It doesn’t look crooked.”

Mom glared at me and covered the hole once again. “Crooked.”

“It feels crooked on the inside, like in your throat?”

She nodded, her eyes indicating with frustration, how many times do I have to repeat myself?

“Do you think I should replace it?” I asked, hoping she would shake her head no.

Instead, Mom shrugged, as if to say, “Beats the hell out of me.”

The hospital had sent us home with boxes of new, sterile tracheostomy tubes. The problem was I had never actually switched one out before. A nurse spent five minutes talking me through it before they released Mom into my care. That was my training. I took a deep breath and told myself, I can do this. What can be so hard—just take one out and put another back in, right?

I pulled on a pair of gloves and carefully undid the ties that kept the trach securely in place. I wiggled it a little; it seemed loose enough. Just give it a soft tug, it would slip right out; pop a new one in, tie it off, and I’d be done. Simple.

“You ready?”

Mom shrugged. Go for it.

I pulled gently on the tracheotomy tube; just as I’d hoped, it slid out easily.

“Oh. That was easy,” I said feeling quite proud of myself while tossing the old trach into the trashcan.

Relieved, Mom inhaled deeply.

And then I watched in horror as flaps of skin growing around the edges of the incision were quickly sucked into the hole blocking her airway. Mom’s eyes grew huge as she realized no air was entering her lungs. I froze, staring at her and thinking, Oh Dear Lord, I’ve just killed my mother. Mom stared back, no doubt thinking, my stupid kid is trying to kill me.

I panicked and did the only thing that came to mind: I stuck my index finger into the hole. In all my life I never imagined that my finger would be in my mother’s throat. There had been numerous fantasies throughout the years involving my foot up her ass, but never once did I imagine finger in throat.

As I removed my finger the skin flaps followed, clearing her airway. As long as I held the skin pulled back she could breathe.

I looked down at her “It’s OK. We’re cool,” I said, trying to convince myself as much as her.

She nodded.

Unable to let go, I stretched out my free hand, blindly searching for anything that might help. On table near the bed, the tips of my fingers were able to reach a small, clear, plastic tube that was meant to go inside the larger tracheostomy tube. I inserted it into the hole; as I did, the skin flaps disappeared back into her neck. Fortunately, she was still able to get air through the tube. Unfortunately, the tube was the diameter of a drinking straw. The hole in my mother’s neck was the diameter of a dime. If I let go it would slide down her throat.

My mother had taken care of me my entire life; now she needed me to step up and return the favor and I was failing miserably. I didn’t trust myself to go back to the original plan of inserting the new tracheotomy. As calmly as I could, I called to my boyfriend in the other room. “Adam? Hey, Adam. Could you do me a favor,” I said, “and call 911?”

It wasn’t long before eight huge firefighters crowded into my mother’s small bedroom and gathered around her hospital bed.

The Captain stepped forward asking, “What seems to be the trouble?”

“I took out her tracheotomy.”

“Why would you do that?” he asked in a very deliberate tone.

“I was trying to change it, but when I took it out these two flaps of skin sucked into the hole, so I grabbed this tube and I stuck that in the hole. But now if I let go, it will slide down her throat.”

The firemen exchanged glances then looked at me. Mom and I looked at each other then back at them. I guess they were expecting me to elaborate, but that’s all I had.

The Captain spoke directly to my mother, “Ma’am are you OK?”

She smiled and nodded. I got the feeling she was enjoying the attention.

“Do you have the other trach?”

“Yes,” I said pointing to a box out of my reach.

Another fireman pulled a tracheostomy out of the box and handed it to the Captain.

“So what do you need me to do?” the Captain asked.

“Um… put it in?” I replied.

He shoved the package at me, “Oh, I can’t do that.”

I pushed it back, “Of course you can.”

“No. I can’t.”

Mom’s eyes followed the box like a tennis match.

“You’re the fireman.” I reminded him.

“I don’t know anything about trachs. Are you her caregiver?”

“Yeah.”

“Then you know more than we do.”

Clearly,” I said, indicating the situation, “I’m not qualified.”

“We can take her to the emergency room. You can ride along and hold the tube.”

I was petrified of making the situation worse, but felt backed into a corner. I screwed it up so I had to fix it. “Fine. I’ll do it.”

The captain put on gloves, asking “What do you need me to do?”

“When I pull this tube out, you to poke your finger in the hole and…”

“How about if I just hold the tube?” He said, cutting me off with a smile.

I nervously joked in return, “Fine, ya big chicken, I’ll do the hard part.”

I shifted to the other side so he could hold the tube.

“Take it out slowly,” I said as the other firemen crowded around to get a better look. My hands shook but I was able to work the sides of the hole and ease the skin out along with it.

“Okay… um… hold the skin back.” I mentally said a quick prayer: Please dear God, don’t let me fuck this up; then asked Mom, “You ready?”

If she was scared she didn’t show it. I tried to be as brave as she was, but my trembling hands gave me away. Slowly, I slid the curved end of the trach into the hole and down her throat. When I felt it was all the way in, I held up my hands, stepped back, and asked Mom, “Does that feel OK?”

The entire room exhaled with relief as Mom answered, “You did good.”

Later when the house was quiet. I sat by my mother’s bed. I could see she was tired. We both were. She looked into my eyes and I couldn’t hold back the tears as I whispered, “I am so sorry.”

I covered my face with my hands and pressed my forehead to the edge of her bed. Then I felt her hand gently rubbing the top of my head, telling me everything was OK. It was a lie, of course. Nothing was OK. She was dying and we both knew it. But no matter how sick she was, or what little time she had left, she was still the mother and I was the daughter that needed comforting.

Jonna Ivin Bio: Jonna Ivin is the author of the crime thriller 8th Amendment and Will Love For Crumbs – A Memoir

Her crime thriller 8th Amendment is also on Amazon.
She is the editor of Loving For Crumbs – An Anthology. Now available on Amazon.
Jonna is a freelance story consultant and available to help you write your memoir or fiction novel. You may contact her via email at jonna@jonnaivin.com, and link to Jonna on Facebook

 

***

Sonia Marsh Says: You have a skill at injecting humor into a dramatic situation and made me smile several times, even when you said, “Oh Dear Lord, I’ve just killed my mother.”  I also felt all the emotions you must have gone through while trying to help your mother “breathe” again.

Please leave your comments for Jonna below and she will be over to respond.

***

 Sonia Marsh is on her virtual blog tour this month.

You can check out all the interviews here, and today I’m so happy to be a guest on Kathy Pooler’s blog. Check out our Google Hangout interview together: “Making your memoir read like a movie.”

Do you have a “My Gutsy Story” you’d like to share?

To submit your own, “My Gutsy Story” you can find all the information, and our sponsors on the “My Gutsy Story” contest page. (VIDEO) Submission guidelines here.

Winner of the August “My Gutsy Story” contest

September 13, 2012 by Sonia Marsh

Congratulations to Laura Dennis, winner of the August “My Gutsy Story” contest who succeeded in getting 122 votes from all her fans. I also want to congratulate Sharon Melton Lippincott in second place, as well as Heidi Morrell and Barbara Ehrentreu for sharing their inspiring stories.

Laura Dennis, 1st Place

 Laura Dennis
Congratulation to Laura Dennis.

Sonia Marsh Says: Laura, what a thought-provoking story about being both the adoptive mother, the adopted child and the birth mother.

Sharon Melton Lippincott

 Sharon Melton Lippincott takes 2nd place.

Sonia Marsh Says: Your story is about taking risks, even though you might be risking disapproval and/or disappointment with a family member. As Samantha White commented, “We can find it within ourselves every time we choose to break a pattern of behavior.”

Heidi Morrell

Heidi Morrell, came in 3rd place.

Sonia Marsh Says: Heidi Morell is a true inspiration to all of us, especially when we take our health for granted. Heidi has MSA and reminds us to “appreciate what we have right now,” and that, “it can always be worse.”

Barbara Ehrentreu 4th place winner.

Sonia Marsh Says: Barbara Ehrentreu shared her beautiful story of the power of love, and how her “gutsy” decision at twenty, was the right one for her.

***
You are all WINNERS, with such amazing writing and stories to share. Thank you for participating, and to all VOTERS for taking part.

Our WINNER Laura Dennis, gets to select his prize from our new list of SPONSORS,

***

Do you have a “My Gutsy Story” you’d like to share?

To submit your own, “My Gutsy Story” you can find all the information, and our sponsors on the “My Gutsy Story” contest page. (VIDEO) Submission guidelines here.

Two September stories are up. So far we have Tom Cirignano  “My Gutsy Story” and Tracy Leigh Ball “My Gutsy Story.”

I hope you enjoy the “My Gutsy Story” series and share with others through the links below. Perhaps you’d like to submit your own. Thanks.

 Sonia Marsh is on her virtual blog tour this month.

Please check out these wonderful ladies who have hosted me on their blogs, and tomorrow 9-14-12, I shall be on My Rite of Passage, Belinda Nicoll’s blog.

8-31-12 Sonia’s 1st interview with author Susan Pohlman on Expat Chat

9-3-12 Sonia’s 2nd interview with Shirley Showalter on 100 memoirs

9-7-12  Sonia’s 3rd Interview with Muriel Demarcus onFrenchYummyMummy.com watch our Hangout video.

9-14-12 Sonia’s 4th Interview with Belinda Nicoll on her blog, My Rite of Passage

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